I have spent the last month and a half online researching apraxia and finding out everything I can to help my son. I highly reccommend apraxia-kids.org and Cherab as places to start. I hope to figure out how to put links onto this page so that it will be easy for readers to find their way to these sites.
I have begun to read "The Late Talker: What to Do if Your Child Isn't Talking Yet." by Marilyn Agin, Lisa Geng and Malcolm J. Nicholl. It is a great book but the chapter on early intervention was hard for me to read. I have a lot of guilt because I KNEW there was something wrong with my son's speech and allowed myself to "wait and see" when doctors and others encouraged me to do so. If I had fought harder I could have gotten AJ help a whole year sooner than he is getting it. This is an excellent book though and has a great deal of detailed information for parents.
I am focused now on the upcoming IEP and learning what I need to know in order to be prepared for it. I have found many great resources and will try to publish links to those as well.
One of the best thing I did was join groups on myspace and facebook deaking with apraxia. It has been very helpful to communicate with others who are going through the same roller coaster ride that we are.
I have already made some wonderful, supportive friends and hope that once I have a better idea of what I am doing I can be as helpful and supportive to them and others as they have been to me.
I long for the time when apraxia isn't the first and last thing I think about each day. When I am comfortable in my knowledge of it and don't feel like I still have so much to learn. Our lives need to have a sense of balance that is sorely lacking at this time. Hopefully once AJ begins at his new school and we are into a routine again this will begin to happen.
I am wishing everyone a happy and productive New Year.
Wednesday, January 2, 2008
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